My Mother, With RSD/ CPRS | Complex Regional Pain Syndrome
My Mother, With RSD/ CPRS | Complex Regional Pain Syndrome – Most people will never have to understand the stress of having a loved one, let alone a mother, struggle everyday while even trying to move around the house. Sometimes, I don’t even know how to explain this pain condition to people who ask. I can’t ever fully understand it and why my strong, brave mother had to be diagnosed when I was only 6. However, this pain condition (Complex Regional Pain Syndrome) changed everything my family once was, for the better. We all have become closer throughout the doctor appointments, her trying new medications, and helping her on the bad days.
It’s hard to make plans with other people. Never knowing if she will feel good enough to go out anywhere, but it makes for the best movie/ snacky days when I’m not in school. Throughout this life changing dog bite mistake, it made my mom and I closer than we ever would’ve been and taught us how to turn the worst situations into the best. Since my other siblings are in college, my mom and I have each other. I have her back when she needs any help. My mom is one of the most stubborn and independent person you will ever meet, she refuses for help most of the time but you must push past and make sure she’s going to be safe. And on the rough days, she doesn’t like to be seen, gets down on herself and gets moody, yet she will still make sure to ask how you are feeling and how school was. She will always make sure you talk before she does.
It really is amazing how much you have to adapt to unexpected things. I saw my mom give up everything she wanted to be once she was in pain. Growing up, I never knew what they meant when I heard “pain condition” and “meds.” I had thought my mom was too young to be in pain, I thought it was for people over at least 60. I could not wrap my small brain around the fact that she was in pain so I would always ask the most of her. She always gave her all with me and now it’s me giving her my all. I admire the strength and determination she has had throughout this long journey. My mother runs two Facebook pages, a website, a Twitter, a Pinterest and an Instagram all about RSD/CPRS and other chronic pain conditions. She writes on her bad days, which makes her hurt even more. But she wants people to know that they are not alone and will never be alone.
Click here to learn more about Reflex Sympathetic Dystrophy/ Complex Regional Pain Syndrome (RSD/CRPS)
About the Author:
My name is Jillissa and I am 14 years old.
I like volleyball, poetry, and drawing.
My future plans include writing and traveling.
My Mother, With RSD/ CPRS – Complex Regional Pain Syndrome