Team Up With Us To Help A Great Cause ALS Therapy Development Institute
Team Up With Us To Help A Great Cause ALS Therapy Development Institute – Chances are you remember a couple of years ago a trend going around with ice-cold buckets of water being dumped over people’s heads, maybe you and your loved one even participated in this craze to help raise awareness for ALS. I know my kids jumped at the opportunity and couldn’t stop laughing at their brother and sisters reaction. Did you ever wonder if that challenge that so many thousands of people participated in helped? Well it did! We now know they are very close to providing a treatment, but they need our help once again!
About this event and some background info:
“When Sarah Coglianese was diagnosed with ALS, she was 33; her daughter Scarlett was just two years old. While Scarlett was learning to take her first steps, Sarah was beginning to use a walker—then, a wheelchair.
In an article for CNN about her journey navigating motherhood with ALS, Sarah writes: “At first, I was drowning in all my inability, in all the ways I thought I would fail her as a mom. Then something unexpected started to happen. The things I couldn’t do for her, she started to do for herself. When she was 2, she dressed herself. By age 3, she was opening doors for me and helping with groceries. At 4, she could make a quiche, and these days she folds laundry and cleans her room with only the slightest bit of prodding. Sometimes, she gets a broom and a dustpan and starts sweeping the floor without being asked. If my foot slips off my footrest, she nonchalantly walks over and plops it back in place.”
ALS (amyotrophic lateral sclerosis or Lou Gehrig’s Disease) is one of the worst diseases we know of. In people with ALS, motor neurons deteriorate leading to muscle weakness and paralysis. Every 90 minutes, someone is diagnosed with ALS, and most people live 2-5 years after their first signs of disease. There is currently no treatment or cure.
In 2015, Sarah launched #WhatWouldYouGive, a national campaign that challenges healthy people to give up an ability (e.g. voices, arms, hands, legs), to understand what life with ALS might be like and raise awareness and funding for ALS research. Sarah’s experience with ALS and her journey through motherhood leads her to believe that her disease will ultimately make her daughter stronger, braver, loving and empathetic—something we all hope for our children.”
What you can do to help:
We are teaming up with the ALS Therapy Development Institute (ALS TDI)–a non-profit biotech 100% focused on finding a treatment and cure–to build awareness of the disease and raise funds for research. We believe in the research efforts of ALS TDI and specifically in AT-1501, a very promising drug that could feasibly and finally change the trajectory of this disease. AT-1501 is on its way to clinical trial, but needs every last penny to advance. And fast!
If you can’t donate the next best thing is to share this post to anyone and everyone you know on every social media channel you belong to and ask friends and family to share it as well. The more we share and put it in front of more eyes, the more chances we have to people reaching in their wallets and donating. Even if it’s a couple bucks it can and it will help! Can you imagine being a part of something so big and knowing your few dollars may have helped save someones life! The possibility of saving someones mother, father, aunt, uncle and yes, even their child! How amazing is that!
I know we wish we could find a treatment for all diseases and illnesses, but we have to start somewhere and with them being so close to a possible treatment why not have ALS be the first! The goal this year is to raise $50,000 and up to $25,000 will be matched dollar for dollar by an anonymous and very generous donor! Together, we can raise funds to help make ALS a thing of the past!